Home
 

.

 Residential Care and Community Integration
for the Developmentally Disabled:

A Bibliography for Parents and Students

Updated 3/30/03

Residential Care | Community Integration | Recreation and Leisure  | Respite Care | Bibliographies | Deinstitutionalization | How to Retrieve Articles

Compiled by Eric Baizer. © 2002 by  Cornerstone House of Santa Barbara.  This bibliography is provided  as a service to parents and relatives of developmentally disabled persons, students, professionals, and researchers. Cornerstone House does not necessarily endorse specific viewpoints or advice advanced in these materials.
 

I. Residential Care for the Developmentally Disabled (see also "Community Integration" and "Deinstitutionalization")

Abel, William F., The effect of organizational rationalization on social interactions within community-based residential programs for mentally handicapped people (dissertation),  Dissertation Abstracts International, January, 1990.

Alaszewski, Andy, Ed; Ong, Bie Nio; Editors, Normalisation in practice:  Residential care for children with a profound mental handicap, Tavistock/Routledge, London, 1990.

Alaszewski, Andy; Ong, Bie Nio; Roughton, Heather, “Staff Management and Support,” in Normalisation in practice:  Residential care for children with a profound mental handicap, Andy, Ed; Ong, Bie Nio; Editors, Tavistock/Routledge, 1990.  

Altman, Barbara Mandell,  Elderly persons with developmental disabilities in long-term care facilities, U.S. Dept. of Health and Human Services,  Public Health Service, Agency for Health Care Policy and Research, Rockville, MD, 1995.

American Health Care Association, Intermediate Care Facilities for the Mentally Retarded: Meeting the Long Term Care Needs and Maximizing the Potential of Individuals With Mental Retardation and/or Developmental Disabilities.

Apollini, Tony, Editor, Achievements in Residential Services for Persons With Disabilities: Toward Excellence, University Park Press, Baltimore, 1980.

Ashbaugh, John W., Assessment of the Incidence and Prevalence of Developmental Disabilities in New Mexico and Associated Needs for Residential Services, Human Services Research Institute, Cambridge, MA, 1986.

Azima, Adele, "Anywhere But Here: May Neighbors Prevent Group Homes for the Mentally Disabled?" Thomas M. Cooley Law Review, v 12 n 1, 1995.

Bachelder, L., & Braddock, D., Socialization practices and staff turnover in community homes for people with developmental disabilities. (Public Policy Monograph Services No. 55). Chicago: University of Illinois at Chicago, Institute on Disability and Human Development (UAP), 1994.  

Bain, Kevin, "Children with severe disabilities: options for residential care," Medical Journal of Australia, Vol. 169, 1998.

Baker, Bruce L.; Heller, Tracy L.; Blacher, Jan; Pfeiffer, Steven I., “Staff attitudes toward family involvement in residential treatment centers for children,” Psychiatric Services, January 1995.

Barber, Kristin; et al., "Establishing a Community-Oriented Group Home and Ensuring Its Survival: A Case Study of Failure," Analysis and Intervention in Developmental Disabilities; Sociopolitics of Behavioral Programs in Institutions and Community Agencies, v3 n2-3, 1983.  

Barlow, Jillian; Kirby, Neil, "Residential Satisfaction of Persons with an Intellectual Disability Living in an Institution or in the Community," Australia and New Zealand Journal of Developmental Disabilities, v17 n1, 1991.

Bellamy, G.T. et al., "Quality of life and lifestyle outcomes: A challenge for residential programs," in R.L. Schalock, Editor, Quality of Life: Perspectives & Issues, American Association on Mental Retardation, Washington, D.C., 1990.

Bigby, C., "Transferring responsibility: the nature and effectiveness of parental planning for the future of adults with intellectual disability who remain at home until mid-life," Journal of Intellectual and Developmental Disability, 21, 4, 1996.

Bigby, C., "When parents relinquish care: informal support networks of older people with intellectual disability," Journal of Applied Research in Intellectual Disabilities, 10, 4, 1997.

Blacher, J. "Placement and its consequences for families of children who have mental retardation." In Blacher, J., editor, When There's No Place Like Home: Options for children living apart from their natural families, Paul H. Brookes, Baltimore, 1994.

Blacher, J. and Baker, B.L. , "Toward meaningful family involvement in out-of-home placement settings," Mental Retardation, 30(1), 1992.

Boggs EM, "Symposium on compliance and quality in residential life. Getting into the jet stream," Ment Retard, Jun;30(3):178-81, 1992.  

Boggs, E., Lakin, K.C., & Clauser, S,M, " Medicaid coverage of residential service," in K.C. Lakin, B.K. Hill, & R.H. Bruininks (Eds.), An analysis of Medicaid's Intermediate Care Facility for the Mentally Retarded (ICFMR) Program (Report No. 20), University of Minnesota, Department of Educational Psychology, Minneapolis, 1985.

Bowd, A.D., "Client satisfaction and normalization of residential services for persons with developmental handicaps," Canadian Journal of Community Mental Health 8, 1989.

Bowen, Isla; Gerry, Margaret, “Changes in adaptive and maladaptive behaviour of clients in community-based residential facilities, Australia & New Zealand Journal of Developmental Disabilities, 1995.

Boyle, Gregory J.; Comer, Peter G., "Demographic Characteristics of Direct-Service Personnel in Community Residential Units," Australia and New Zealand Journal of Developmental Disabilities, v16 n1, 1990.

Braddock, D., & Mitchell, D., Residential services and developmental disabilities in the United States: A national survey of staff compensation, turnover and related issues, Washington D.C.: American Association on Mental Retardation. 1992.  

Braddock, D., “The transformation of public spending patterns,” in R. Kugel (Ed.), Changing patterns in residential services for mentally retarded persons, third edition, 89-115, Washington, DC: President's Committee on Mental Retardation, 1986.

Braddock, D. , "Trends and Milestones--Medicaid and persons with developmental disabilities," Mental Retardation, 34, 331, 1996.

Bradley, V. et al., Intermediate care facilities for people with mental retardation: compendium of state quality assurance systems, Human Services Research Institute, Cambridge, MA, 1996.

Bromley, B.E. and Blacher, J.,"Parental reasons for out-of-home placement of children with severe handicaps." Mental Retardation, 29(5), 1991.

Bruininks, R. H., Olson, K. M., Larson, S. A., & Lakin, K.C., “Challenging behaviors among persons with mental retardation in residential settings,” in T. Thompson & D. B. Gray (Eds.), Destructive behavior in developmental disabilities, Sage Focus Edition 170), Sage Publications, Thousand Oaks, CA, 1995.

Burchand, S.N. et al., ""Manager competence, program normalization and client satisfaction in group homes, Education and Training in Mental Retardation 25, 1990.

Burchand, S.N. et al., "An examination of lifestyle and adjustment in three community residential alternatives," Research in Developmental Disabilities 12, 1991.

Calapai, Peter, “Adaptive behaviors of developmentally disabled adults living in community residences,” Dissertation Abstracts International, February,  1990.

Center on Residential Services and Community Living, Training Issues for Direct Service Personnel Working in Community Residential Programs for Persons with Developmental Disabilities, University of Minnesota, 1994. 

Chen, T., Bruininks, R. H., Lakin, C. L., & Hayden, M. (1993). “Personal competencies and community participation in small community residential programs: a multiple discriminant analysis,” American Journal on Mental Retardation, 98(3), 1993.

Collins, Jeff, "State boosting group homes; California has 30 days to remedy deficiencies in its care of the developmentally disabled," Jeff Collins, The Orange County Register, December 6, 1997.

Colorado Office of State Auditor, Department of Human Services, Division for Developmental Disabilities, Residential services reimbursements performance audit, Denver, CO, 1995.

Connealy, S. et al., "An evaluation of the use of small group homes for adults with a severe and profound handicap, " Mental Handicap Research, 5,2, 1992.

Coulter, D.L., "Home is the place: Quality of life for young children with developmental disabilities," in R.L. Schalock (Ed.), Quality of Life: Perspectives & Issues, American Association on Mental Retardation, 61-69, Washington, D.C. 1990.

Cox, C and Pearson, M., Made to care: the case for residential and village communities for people with a mental handicap. London: The Rannock Trust, 1995.

Cunningham, P.J. & Mueller, C.D., "Individuals with mental retardation in residential facilities: Findings from the 1987 National Medical Expenditure Survey," American Journal on Mental Deficiency, 96 (2), 1991.

Davis, R., Silverstein, B., Uehara, E., & Sadden, L., Evaluation and service identification for developmentally disabled residents of intermediate care and skilled nursing facilities, Taylor Institute, Chicago 1987. Davison, J.,  Residential care: the provision of quality care in residential and educational group care settings, Aldershot; Arena, Brookfield, VT, 1995.

Deslatte, Aaron, “Families who take care of disabled members at home face obstacles,” Knight Ridder Newspapers,  July 6, 2000.   

Driscoll, Anne, “Enlarging the world of disabled. (Boston, Partners for Disabled Youth, mentor program),” The New York Times, August 13, 989 v138 s1 p48(L) col 3.  

Duker, P.C., Seys, D., van Leeuwe, J. & Willinge Prins, L. Occupational conditions of ward staff and quality of residential care for individuals with mental retardation," American Journal on Mental Retardation, 95(4), 388-396, 1991.

Emerson, E., et al., "A descriptive analysis of the relationships between social context, engagement and stereotyping in residential services for people with severe and complex disabilities," Journal of Applied Research in Intellectual Disabilities, 12, 1, 1999.

Emerson, E; Robertson, J; Gregory, N; Hatton, C; Kessissoglon, S; Hallam, A; Järbrink, K; Knapp, M; Netton, A and Noonan Walsh, P.,  The quality and costs of supported living schemes and group homes in the UK, Manchester: Hester Adrian Research Centre, 1999.

Farrell, Mary Ann, “New Jersey explores alternatives to institutional housing,” Knight-Ridder/Tribune News Service, June 8, 1999.

Faw GD, Davis PK, Peck C, "Increasing self-determination: teaching people with mental retardation to evaluate residential options," J Appl Behav Anal, Summer; 29(2):173-88, 1996.

Felce, David; Lowe, Kathy; Blackman, Derek, “Resident behaviour and staff interaction with people with intellectual disabilities and seriously challenging behaviour in residential services,” Mental Handicap Research, 1995.

Felce, D; Lowe, K; Perry, J; Baxter, E; Jones, E; Hallam, A and Beecham, J, “Service support to people in Wales with severe intellectual disability and the most severe challenging behaviours: processes, outcomes and costs,” Journal of Intellectual Disability Research, 42, 5, 1998.

Felce, D, “The Gerry Simon Lecture, 1998: enhancing the quality of life of people receiving residential supportBritish Journal of Learning Disabilities, 27, 1999.

Fujiura, G.T., “Research perspectives and the community living experience,” in M.F. Hayden & B. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities, 23-42, Baltimore: Paul H. Brookes Publishing Company, 1994.

Gardner, James M., "Community Residential Alternatives for the Developmentally Disabled," Mental Retardation, 15, 6, Dec 77.

Goldberg, Carol,  “Housing crisis beyond NIMBYism” (Housing for mentally retarded or developmentally disabled people in Long Island; not-in-my-backyard syndrome), LI Business News, n15 p1(3), April 13, 1998.

Golden, Jeannie; Reese, Matthew, "Focus on Communication: Improving Interaction between Staff and Residents Who Have Severe or Profound Mental Retardation," Research in Developmental Disabilities, v17 n5, Sep-Oct 1996.

Harper, D. C., “Emerging rehabilitation needs of adults with developmental disabilities,” Journal of Rehabilitation, 62, 7-9, 1996.

Hatton C, Emerson E, Robertson J, Henderson D, Cooper J., “The quality and costs of residential services for adults with multiple disabilities: a comparative evaluation,” Res Dev Disabil, Nov-Dec;16(6):439-60, 1995.

Hatton, C; Emerson, E; Robertson, J; Henderson, D and Cooper, J, "Factors associated with staff support and resident lifestyle in services for people with multiple disabilities," Journal of Intellectual Disability Research, 40, 5, 466-477, 1996.

Hayden, Mary, Ed., "Training Issues for Direct Service Personnel Working in Community Residential Programs for Persons with Developmental Disabilities," Policy Research Brief; v6 n2 Jun 1994.

Haylock, C.L., Johnson, M.A., and Harpin, V.A. (1993). Parents' Views of Community Care for Children with Motor Disabilities. Child: Care, Health, and Development, 19(3), 209-220.

Heal, L.W., Bruininks, R.H., et al., "Movement of developmentally disabled individuals among out-of-home residential facilities," Res. Dev. Disabil., 10(3), 1989.

Heller, T. et al., "Environmental characteristics of nursing homes and community-based settings and the well-being of adults with intellectual disability," Journal of Intellectual Disability Research, 42,5, 1998.

Heller T.; Factor A. R.; Hahn J.E., “Residential transitions from nursing homes for adults with cerebral palsy,” Disability and Rehabilitation, 1 May 1999, vol. 21, no. 5.

Heller, T; Factor, A; Hsieh, K and Hahn, J, "Impact of age and transitions out of nursing homes for adults with developmental disabilities," American Journal on Mental Retardation, 103, 3, 1998.

Hemming, H., Lavender, T. & Pill, R., “Quality of life of mentally retarded adults transferred from large institutions to new small units,” American Journal of Mental Deficiency, 86(2), 157-169, 1981.

Hewitt, A, Identification of competencies and effective training practices for direct support staff working in community residential service for persons with developmental disabilities, Minneapolis, MN: University of Minnesota, 1998.

Hewitt, A., & Larson, S.A., Training issues for direct service personnel working in community residential programs for persons with developmental disabilities, Policy Research Brief, 6 (2), Minneapolis: University of MN, Center on Residential Services and Community Living, 1994.

Hill, B.K. et al., "The quality of life of mentally retarded people in residential care, " Social Work 29, 1984.

Howe, J; Hurner, R and Newton, S, "Comparison of supported living and traditional residential services in the State of Oregon," Mental Retardation, 36, 1, 1998.

Hudson-Alez, G. and Barrett, J., "Attitudes to people with intellectual disabilities moving into ordinary houses: what the neighbors say," Journal of Applied Research in Intellectual Disabilities," 9, 1, 1996.

Jacobson, J. W., & Ackerman, L. J., "Factors associated with staff tenure in group homes serving people with developmental disabilities," Adult Residential Care Journal (6), 45-60, 1992.

Jacobson, John W.; Harper, Mary S, "Mental Health Status of Older Persons with Mental Retardation in Residential Care Settings," Australia and New Zealand Journal of Developmental Disabilities, v15 n3-4, 1989.

Janicki, M.P., M. W. Krause, & M. M. Seltzer (Eds.), Community residences for persons with developmental disabilities, Paul H. Brookes, Baltimore, 1988.

Janicki, M.P. and MacEachron, A.E., "Residential, health and social service needs of elderly developmentally disabled persons," Gerontologist, April, 24(2), 1984.

Joyce, T., "The effect of individual and environmental characteristics on outcomes in residential services," Mental Handicap Research, 7,2, 1994.

Kearney, Christopher A.; Durand, V. Mark; Mindell, Jodi A, “Choice assessment in residential settings,” Journal of Developmental & Physical Disabilities, September, 1995.

Knobbe, C. et al., "Benefit-cost analysis of community residential versus institutional services for adults with severe mental retardation and challenging behaviors," American Journal on Mental Retardation, 99, 5, 1995.

Knoll, J.A., "Defining quality in residential services," in Bradley and Besani, Editors, Quality Assurance of Individuals with Developmental Disabilities, Brookes Publishing Company, 1990.

Knowles, Margaret; Landesman, Sharon, "National Survey of State-Sponsored Training for Residential Direct-Care Staff," Mental Retardation, v24 n5, Oct 1986.

Kugel, R. B., & Wolfensberger, W. (Eds.), Changing patterns in residential services for the mentally retarded, President's Committee on Mental Retardation U.S. Department of Health and Human Services, Office of Human Development Services, Washington, DC, 1979.

Lakin, C. , A review of literature of home and community services of persons with mental retardation and related conditions, Research and Training Center, Institute on Community Integration, University of Minnesota, 1999.

Lakin, K. C., Prouty, R., Anderson, L., & Polister, B,  “Trends and milestones: Utilization rates for residential services increase,” Mental Retardation, 35, 1997.

Lakin KC, Hall MJ, "Medicaid-financed residential care for persons with mental retardation," Health Care Financ Rev, Dec; Spec No:149-60, 1990.

Lakin, K.C., Anderson, L., and Prouty, R., "Children and youth receiving residential services for persons with developmental disabilities outside their family home: Trends from 1977 to 1997", Policy Research Brief 9, Research and Training Center on Community Living, University of Minnesota, Minneapolis, 1998.

Lakin, K.C., Anderson, L.L. & Prouty, R., "Decreases continue in out-of-home residential placements of children and youth with mental retardation," Mental Retardation, 36(2), 165-168, 1998.

Lakin, K.C., Hill, B. & Bruininks, R. (Eds.), An Analysis of Medicaid's Intermediate Care Facility for the Mentally Retarded (ICF-MR) Program, Research and Training Center on Community Living/ Institute on Community Integration, University of Minnesota, Minneapolis, 1985.

Lakin, K.C., Blake, E.M., Prouty, R.W., Mangan, T., & Bruininks, R.H., Residential Services for Persons with Developmental Disabilities: Status and Trends Through 1991, University of Minnesota Center on Residential Services and Community Living, Institute on Community Integration (UAP), Minneapolis, 1993.

Lakin, K.C., Hill, B.K., Chen, T.H., & Stephens, S.A., Persons with mental retardation and related conditions in mental retardation facilities: Selected findings from the National Medical Expenditure Survey, University of Minnesota, Center for Residential Services and Community Living/Institute on Community Integration, Minneapolis, 1989.

Lakin, K.C., Hill, B.K., Hauber, F.A., Bruininks, R.H., & Heal, L.W., "New admissions and readmissions to a national sample of residential facilities," American Journal on Mental Deficiency, 88, 13-20, 1983.

Lakin, K.C., Jaskulski, T.M., Hill, B.K., Bruininks, R.H., Menke, J.M., White, C.C., & Wright, E.A., Medicaid services for persons with mental retardation and related conditions, University of Minnesota, Center for Residential Services and Community Living/Institute on Community Integration, Minneapolis, 1989.

Lakin, K.C., White, C.C., Hill, B.K., Bruininks, R.H., & Wright, E.A., "Longitudinal change and interstate variability in residential services for persons with mental retardation," Mental Retardation, 28(6), 343-351, 1990.

Lakin, K. Charlie; Et al., "Majority of MR/DD Residential Service Recipients Now in Homes of 6 or Fewer Residents," Mental Retardation, v34 n3, Jun 1996. 1996

Lakin, K. Charlie; Et al., "Habilitative Functions and Effects of Residential Services," Remedial and Special Education (RASE), v7 n6, Nov-Dec 1986.

Larson, S. A., Hewitt, A., & Lakin, K. C., “Residential services personnel: Recruitment, training and retention,“ In M. Hayden & B. Abery (Eds.),  Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities (pp. 313-341). Paul H. Brookes, Baltimore, 1994.

Larson, S. A., & Lakin, K. C., "Direct care staff stability in a national sample of small group homes," Mental Retardation(30), 13-22, 1992.

Larson, S.A., A Longitudinal Study of Turnover among Newly Hired Residential Direct Support Workers in Small Community Homes Serving People with Developmental Disabilities, A Ph.D. Dissertation. Minneapolis, MN: University of Minnesota, 1997.

Larson, S.A. & Lakin, K.C., Status and changes in Medicaid's Intermediate Care Facility for the Mentally Retarded (ICF-MR) program: Results from Analysis of the Online Survey Certification and Reporting System, University of Minnesota, Center on Residential Services and Community Living/Institute on Community Integration, Minneapolis, 1995.

Lash, Marilyn and Kahn, Paul, Choosing Home or Residential Care: A Guide for Parents of Children with Severe Physical Disabilities, $3.50 each.

Lovett, Steven, “The psychological development of the children,” in Normalisation in practice:  Residential care for children with a profound mental handicap, Andy, Ed; Ong, Bie Nio; Editors, Tavistock/Routledge, 1990.

Lowe, K; Felce, D; Perry, J; Baxter, H and Jones, E, "The characteristics and residential situation of people with severe intellectual disability and the most severe challenging behaviour in Wales," Journal of Intellectual Disability Research, 42, 5, 1998.

Lubin, RA. et al., "Community acceptance of residential programs for developmentally disabled persons," Appl. Res Ment Retard, 3 (2), 1982.

Lutfiyya, Zana Marie, et al., A Question of Community: Quality of Life and Integration in "Small Residential Units" and Other Residential Settings, Syracuse University, Center on Human Policy, 1987.

Maisto, A and Hughes, E, "Adaptation to group home living for adults with mental retardation as a function of previous residential placement," Journal of Intellectual Disability Research, 39, 1, 1995.

Mangan, T., Blake, E.M., Prouty, R.W., & Lakin, K.C., Residential Services for Persons with Mental Retardation and Related Conditions: Status and Trends Through 1993, University of Minnesota Research and Training Center on Residential Services and Community Living, Institute on Community Integration (UAP), Minneapolis, 1994.

Mangan, Troy W.; Lakin, K. Charlie, Summary of National and State Databases on Residential Services for Persons with Developmental Disabilities, Report 44, University of Minnesota, Institute on Community Integration, Minneapolis, 1994.

Mansell, Jim, "Specialized Group Homes for Persons with Severe or Profound Mental Retardation and Serious Problem Behaviour in England," Research in Developmental Disabilities, v15 n5, Sep-Oct 1994.

Mattika, L, "Effects of psychological factors on the perceived quality of life of people with intellectual disabilities," Journal of Applied Research in Intellectual Disabilities, 9, 2, 1996.

Meador, M.A. et al., "Evaluation of environmental support in group homes for persons with mental retardation," Mental Retardation 29(3), 1991.

Mitchell, D. & Braddock, D., “Compensation and turnover of direct care staff: A national survey,” In M. Hayden & B. Abery (Eds.), Challenges for a service system in transition: Ensuring quality community experiences for persons with developmental disabilities, 289-312. Baltimore, MD: Paul H. Brookes Publishing Company, 1994.

Mitchell, D., & Braddock, D. “ Compensation and turnover of direct-care staff in developmental disabilities residential facilities in the United States I: Wages and benefits,” Mental Retardation,31, 429-437, 1993.

Mitchell, D., & Braddock, D, “Compensation and turnover of direct-care staff in developmental disabilities residential facilities in the United States II: Turnover,” Mental Retardation, 32, 34-42, 1994.

Morris, Alison; Alaszewski, Andy, “Education and health: Co-ordinating services,” in Normalisation in practice:  Residential care for children with a profound mental handicap, Andy, Ed; Ong, Bie Nio; Editors, Tavistock/Routledge, 1990.

O'Connor, Gail, Home is a Good Place: A National Perspective of Community Residential Facilities for Developmentally Disabled Persons, American Association on Mental Deficiency, Washington, 1976.

Palley, Howard A. and Van Hollen, Valerie, "Long-term care for people with developmental disabilities, A Critical Analysis," Health and Social Work, August, 2000.

Parsons MB, Reid DH, “Training residential supervisors to provide feedback for maintaining staff teaching skills with people who have severe disabilities,” J Appl Behav Anal, Fall;28(3):317-22, 1995

Paul A.; Cawson P. “Safeguarding disabled children in residential settings: what we know and what we don't know,”  Child Abuse Review, September/October 2002, vol. 11, no. 5, Chichester, UK.

Peterson's Guides, Caring for kids with special needs: residential programs for children and adolescents. 2nd ed, Peterson's Guides, Princeton, N.J., 1994. 

Piat, Myra, “The NIMBY Phenomenon:  Community Residents' Concerns about Housing for Deinstitutionalized People,” Health and Social Work, May 2000 v25 i2.

Pilling, D and Watson, G (eds), Evaluating quality in services for disabled and older people,  London: Jessica Kingsley, 1995.

Prouty, R.W. & Lakin, K. Charlie. (Eds.), Residential Services for Persons with Developmental Disabilities: Status and Trends Through 1999, University of Minnesota, Research and Training Center on Community Living, Institute on Community Integration, Minneapolis, MN, 2000.

Prouty, R.W., & Lakin, K.C., A summary of states' efforts to positively affect the quality of Medicaid Home and Community-Based Services for Persons with Mental Retardation and Related Conditions, University of Minnesota, Center for Residential and Community Services, Minneapolis, 1992.

Racino, Julie Ann, “Preparing personnel to work in community support services,” in Normalisation in practice:  Residential care for children with a profound mental handicap, Andy, Ed; Ong, Bie Nio; Editors, Tavistock/Routledge, 1990.

Rapley, M; Ridgway, J and Beyer, S , "Staff : staff and staff : client reliability of the Schalock and Keith (1993) Quality of Life Questionnair," Journal of Intellectual Disability Research, 42, 1, 37-42, 1997.

Raynes, N. et al., The cost and quality of community residential care, David Fulton Publishers, London, 1994.

Rawlings, S., "Lifestyles of severely retarded non-communicating adults in hospitals and small residential homes," British Journal of Social Work 15, 1985.

Reid DH, Parsons MB, Green CW, Schepis MM, “Evaluation of components of residential treatment by Medicaid ICF-MR surveys: a validity assessment,” J Appl Behav Anal, Summer;24(2):293-304, 1991.

Reuter, Jeanette, et al., "Social Milieu of a Residential Treatment Center for Severely or Profoundly Handicapped Young Children," American Journal of Mental Deficiency, v84 n4, Jan 1980.

Rimmer, James H.; Braddock, David; Marks, Beth, “Health characteristics and behaviors of adults with mental retardation residing in three living arrangements,” Research in Developmental Disabilities, November-December, 1995.

Rosenau, Nancy, "Do We Really Mean Families for All Children?  Permanency Planning for Children With Developmental Disabilities," Policy Research Brief, Research and Training Center on Community Living, University of Minnesota, 2000.

Rubin, S.S., Park, H., & Braddock, D, Wages, benefits, and turnover of residential direct care staff serving individuals with developmental disabilities in Illinois, The University of Illinois at Chicago, Department of Disability and Human Development,  Chicago, 1998.

Scheerenberger, Richard C.; Felsenthal, D, "Community Settings for MR Persons: Satisfaction and Activities," Mental Retardation, 15, 4, Aug 77. 1977

Schopler, E., Hennike, JM, "Past and Present trends in residential treatment," J. Autism Dev.Disord., September, 1990, Vol. 3, pp. 291-8.

Sherman, B.R., "Predictors of the decision to place developmentally disabled family members in residential care," Am. J. Ment. Retard., Jan, 92(4), 1988.

Shiell, Alan; Wright, Ken, “The economic costs,” in Normalisation in practice:  Residential care for children with a profound mental handicap, Andy, Ed; Ong, Bie Nio; Editors Tavistock/Routledge, 1990.

Slater,Mary A.; Bunyard, Patricia D., "Survey of Residential Staff Roles, Responsibilities, and Perception of Resident Needs," Mental Retardation, v21 n2, Apr 1983.

Smith, G.A. and Gettings, R.M., Medicaid Home and Community-Based Waiver Services and Supports for People With Developmental Disabilities: Trends through 1997, National Association of State Directors of Developmental Disability Services, 1997.

Smith, Judy D, "The Children's Project: A Residential Option for Children with Developmental Disabilities," in Baine, David, Ed, et al., Alternative Futures for the Education of Students with Severe Disabilities, Edmonton, Canada, May 6-8, 1987.

Stancliffe, R and Lakin, C, "Analysis of expenditures and outcomes of residential alternatives for persons with developmental disabilities," American Journal on Mental Retardation, 102, 6, 552-568, 1998.

Stancliffe, R, " Community living unit size, staff presence and residents choice-making," Mental Retardation, 35, 1, 1-9, 1997.

Stancliffe, R. et al., "Effectiveness and quality of individual planning in residential settings: an analysis of outcomes," Mental Retardation, 37, 2, 1999.

Strauss, David; Shavelle, Robert; Baumeister, Alfred; Anderson, Terence W., "Mortality in Persons with Developmental Disabilities after Transfer into Community Care," American Journal on Mental Retardation, v102 n6, May 1998.

Taylor, SJ, Latkin, KC, Hill, BK, "Permanency planning for children and youth: out of home placement decisions," Exceptional Child, Vol. 55. 1998.

Taylor, S. J., "Caught in the continuum: A critical analysis of the principle of the least restrictive environment," Journal of The Association for Persons with Severe Handicaps, 1988.

Tinsley, Diane J.; Et al., "The Identification of Problem Areas in the Establishment and Maintenance of Community Residential Facilities for the Developmentally Disabled," Working Paper No. 64, The Rehabilitation Research and Training Center in Mental Retardation, University of Oregon, 1973.

U.S. Congress, House Committee on Small Business, Growth of small, residential living programs for the mentally retarded and developmentally disabled (hearing March 29, 1993), Congressional Sales Office, Washington, D.C., 1993.

Walker, Pam; Salon, Rebecca, Supporting People in the Community: A Case Study of the Residential Support Program, Centennial Developmental Services, Weld County, Colorado. Site Visit Report, 1987.

Walker, R. A., & Prazak, G., Program evaluation for residential services programs, Commission on Accreditation of Rehabilitation Facilities, Tucson, AZ, 1989.

Warchol, Alice, "Abuses tarnish group homes in California Horror stories: Documentation of deaths, abuse and poor care mount," Ventura County Star, November 30, 1997

Warchol, Alice, "Study finds group homes no higher risk to residents, Ventura County Star, 14 March 1998.

Wetzel, Ralph J, "Behavior Analysis of Residential Program Development," Research in Developmental Disabilities, v13 n1, 1992.

Whittaker, James K.; Pfeiffer, Steven I., "Research Priorities for Residential Group Child Care," Child Welfare, v73 n5 p583-601 Sep-Oct 1994.

Wieck, Colleen A.; Bruininks, Robert H, The Cost of Public and Community Residential Care for Mentally Retarded People in the United States, Project Report No. 9, University of Minnesota, Minneapolis, 1980.

Wilson, J. and Kouzi, A., "Quality of the residential environment in board-and-care homes for mentally and developmentally disabled persons," Hosp. Community Psychiatry, 41(3), 1990.

Wolfensberger, W, The principle of normalization in human services,  National Institute on Mental Retardation, Toronto, 1970.

Youngblood, Grace Strano; Bensberg, Gerard J., Planning and Operating Group Homes for the Handicapped, Research and Training Center in Mental Retardation, Texas Tech University, Lubbock, TX, 1983.

Zappolo, A., Lakin, K.C., & Hill, B.K., “Persons in institutions and special residential settings,” in I. Fitzgerald & S. Thompson-Hoffman (Eds.), Disability in the United States, Springer Publishing Co., New York, 1990.

II. Community Integration (see also " Residential Care" and "Deinstitutionalization")

III. Recreation and Leisure

IV. Respite Care

Top of Page

V. Bibliographies

Bersani, Henry A., Jr., et al., Research on the Economics of Residential Services in Mental Retardation and Related Fields: An Annotated Bibliography, Center on Human Policy, Syracuse, NY, 1987.

Brown, Ivan, Friefeld, Sharon, and Schiller, Christine, Quality of Life for Persons with Developmental Disabilities: An Annotated Bibliography, The Centre for Health Promotion, University of Toronto, April 1993.

Center for Disability Information & Referral (CeDIR), Selected Bibliography.

Council for Exceptional Children, Reintegrating Mentally Retarded People into the Community: An Annotated Bibliography of Print and Audiovisual Information and Training Materials, Reston, VA, 1975.

Garoogian, Andrew, Deinstitutionalization and the care of the developmentally disabled: a select bibliography 1961-1981, Vance Bibliographies, Monticello IL , 1982.

Hall, Mair and Walker, Pam, Eds, Annotated Bibliography on Community Integration, Third Edition, Center on Human Policy, Syracuse University, April, 1998.

Mitchell, D., Bachman, K., Longhurst, N., & Braddock, D., Research on wages and turnover of direct care staff in residential facilities for people with developmental disabilities: An annotated bibliography, The University of Illinois at Chicago, University Affiliated Program in Developmental Disabilities, Chicago, 1990.

Allan Roeher Institute, Community Living and Intellectual Disability in Canada, 1980-1992: An Annotated Bibliography, 277 pp.

Smieja, Linda L., et al., Brothers and Sisters of Children with Disabilities: An Annotated Bibliography, Families as Allies Project, 1990, available from Educational Resources Information Center (ERIC.

Taylor, Steve and Harris, Perri, Selected Annotated Bibliography: Disability Studies and Mental Retardation, Disabilities Study Quarterly, 16(3), 4-13.

White, Anthony, Group homes for the mentally retarded/developmentally disabled: a selected bibliography, Vance Bibliographies, Monticello, IL, 1988.

VI.  Deinstitutionalization

Top of Page